NOT My Favorite Things

Syringes and dressings

And plastic cap holders

Rubber glove boxes

And medicine folders

Alcohol wipes that are waiting to sting,  

These are a few of my NOT favorite things!

When the tape tugs,

When the shots sting,

When I’m feeling sad . . .

I simply remember my NOT favorite things

And still I don’t FEEL . . .  TOO bad!

 

Even though Rogers & Hammerstein would not approve of the lyrics, the song pretty well sums up my week back home. We’ve been busy learning how to navigate this new world of syringes, catheters, injections, and a foreign glossary of terminology.

 

And still, it hasn’t been too bad.

 

It’s the daily injections that you think would be the worst, but really, that’s been going well. Sure, they hurt, they sting, but they are also done for the day. The nausea has been kept under wraps with medication and while I’m tired, it hasn’t been a huge distress either.

 

It’s the tunneled central venous catheter that is my biggest pain. It isn’t exactly comfortable as it tugs, pulls, pokes and is literally a pain in the neck. It’s in the way, it’s foreign and worst of all, it’s not going away any time soon.  Ugh.

 

Still, it hasn’t been too bad.

 

And sometimes, not being TOO bad – is actually really good!

Despite what Julie Andrews may sing, only Grace can help me see that.  

What's Next?

Hi Everyone,

If you’re following along on the timeline, here’s an update:

MOBILIZATION:

Finishing this up this week at home – daily injections
 

COLLECTION:

Return to Omaha Sunday afternoon (January 19^th). Labs done on Sunday night.

If Labs are good, stem cell collection begins Monday morning (January 20^th)

Collection could take a couple days or a week. This will be done as an outpatient.

 
HIGH DOSE CHEMO:
After collection, will be admitted into the hospital.
 

TRANSPLANT:

After the High Dose Chemo and in the hospital.

 

We’ll you keep you posted as we get more details on the procedure.

Thank you for the prayers everyone!