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Syringes and dressings
And plastic cap holders
Rubber glove boxes
And medicine folders
Alcohol wipes that are waiting to sting,
These are a few of my NOT favorite things!
When the tape tugs,
When the shots sting,
When I’m feeling sad . . .
I simply remember my NOT favorite things
And still I don’t FEEL . . . TOO
bad!
Even though Rogers & Hammerstein would not approve of the lyrics,
the song pretty well sums up my week back home. We’ve been busy learning how to
navigate this new world of syringes, catheters, injections, and a foreign glossary
of terminology.
And still, it hasn’t been too bad.
It’s the daily injections that you think would be the worst, but
really, that’s been going well. Sure, they hurt, they sting, but they are also
done for the day. The nausea has been kept under wraps with medication and
while I’m tired, it hasn’t been a huge distress either.
It’s the tunneled central venous catheter that is my biggest pain. It
isn’t exactly comfortable as it tugs, pulls, pokes and is literally a pain in
the neck. It’s in the way, it’s foreign and worst of all, it’s not going away
any time soon. Ugh.
Still, it hasn’t been too bad.
And sometimes, not being TOO bad – is actually really good!
Despite what Julie Andrews may sing, only Grace can help me see that.
Hi Diane! I am the wife and caregiver for Big EZ over at Walking With Big EZ. Your mother found our blog and wrote me an email which mentioned your blog. So happy to be praying for another faithful warrior battling MM, and I look forward to reading your updates. First of all, let me encourage you in the journey. Ernie (affectionately known as Big EZ) was diagnosed with MM on January 20 of 2010. We are now four years out, and enjoying life with our children and grandchildren. We have seen three grandchildren born since diagnosis and are expecting another in May. We have traveled to the Keys, Disney, Seattle and Alaska. We are heading to the Grand Canyon and Hoover Dam in May. All this to say that though MM isn't considered curable, it is highly treatable and you can continue to plan for your future and enjoy life! It isn't easy by any means, as you already know, but the Lord will see you through. We have gotten through the initial chemotherapy, transplant and he has been on maintenance every since. Our journey to transplant is documented on our blog under the "transplant" label if you have some spare time and care to look through our pictures and learn what you might expect through the process. I love your Minions and your sense of humor! Keep sharing!
ReplyDeleteDear Diane,
ReplyDeleteI was glad to be able to read your blog again. You are so creative with your new lyrics to an old favorite! I love it.
I just wanted you to know that I have been praying for you and your family - for strength, travel mercies, for special needs to be met, for courage, and for Grace to be poured out beyond measure. You are loved by so many. Looking forward to our next cup of coffee together. Until then, you keep resting in the Lord, and keep singing your song...
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ReplyDeleteWhatsapp Or Call...+2348149277967.
He might be late to respond because he is always busy with patents, but he will surely get back to you with a positive response.